About Step Beyond Celiac

Step Beyond Celiac is a fun run/walk event for the entire family! Currently held in three cities across the US, Step Beyond Celiac 5Ks raise funds to support the Beyond Celiac research efforts and help the organization develop a global patient registry of people diagnosed with celiac disease who want to participate in research studies, including clinical trials.

Vision Statement

A world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.

Mission Statement

Beyond Celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

Potential Impact for Autoimmune Diseases

Finding treatment options and ultimately curing celiac disease will advance research for other autoimmune diseases.1

The Future of Celiac Disease

  • Celiac disease is widely recognized as a serious, common, genetic autoimmune disease
  • People with celiac disease symptoms, and family members who are genetically at risk, are highly motivated to seek testing and diagnosis from medical professionals
  • Medical professionals readily identify symptoms and provide timely and comprehensive diagnosis so that people no longer have to suffer with known and unknown symptoms and hidden consequences of celiac disease
  • Medical care treatments are readily available that ensure there are no negative health or lifestyle consequences of being diagnosed with celiac disease
  • Insurers, including governments, recognize the benefit of medically treating and, eventually, curing celiac disease and provide coverage to make effective medical treatment affordable for everyone
  • Access to appropriate medical care and the standard of care that people diagnosed with celiac disease receive is consistent regardless of geography, social or economic boundaries
  • People with celiac disease are receptive to taking new treatments and living a “normal” life, free from the fear of food
  • Curing celiac disease provides a gateway to curing other autoimmune diseases
  • Beyond Celiac is the recognized conduit for education, exchange of information and partnerships between key stakeholders: patients, scientists and researchers, medical providers, pharmaceutical, diagnostic and biotech companies, and payers

1Fasano A & Shea-Donohue T. Mechanisms of Disease: the role of intestinal barrier function in the pathogenesis of gastrointestinal autoimmune diseases. Nature Reviews Gastroenterology and Hepatology 2, 416-422 (September 2005) | doi:10.1038/ncpgasthep0259

If you’re interested in volunteering or heading up a new location of Step Beyond Celiac, please contact Jilian Hunt at jhunt@beyondceliac.org or Nancy Ginter at nginter@beyondceliac.org.

Don’t want to attend a Step Beyond Celiac walk/run but still want to help advance celiac disease research? You can donate to Beyond Celiac directly!


To learn more about Step Beyond Celiac sponsorship opportunities, please contact the following individuals:

Kansas City/Dallas

Jilian Hunt

Philadelphia/Virtual/ National Sponsorship

Katie Jensen

Learn more about Sponsorship Opportunities here.

"Sometimes you have to accept battles to get where you're going in life. I'm not exactly sure where that is, but if these past years are any guide, then I welcome another year! My [struggle with celiac disease] brought me to help create the nation's first Step Beyond Celiac 5K to benefit research towards a cure for celiac disease. This is about friends--new and old--giving back to community, participating in something bigger than yourself and winning....winning in life through a cure. Thanks to all who are making this happen."
Chad Shaffer
Beyond Celiac Board Member &
Co-Chair of Step Beyond Celiac Kansas City


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