About Step Beyond Celiac

Step Beyond Celiac 5Ks are fun events for the entire family!

Currently held in three cities across the US, Step Beyond Celiac 5Ks raise funds to support the Beyond Celiac research efforts and help the organization develop a global patient registry of people diagnosed with celiac disease who want to participate in research studies, including clinical trials.


Driven by volunteers, Step Beyond Celiac launched in Kansas City in 2017 to great success – over 400 people participated in the first year and 650 in the second. The event has raised over $100,000 for celiac disease research! Following another successful Kansas City event in 2018, Beyond Celiac launched additional walks in Philadelphia and Dallas for 2019. The inaugural Philly race had almost 1,100 participants, nearly 70 volunteers, 5 princesses, Spiderman, Wonder Woman, and the Phillie Phanatic—what an amazing turnout for what’s only the first of many years of this awesome event!

Most of the success of the Step Beyond Celiac events can be attributed to outstanding volunteer contributions of time and effort, and Beyond Celiac is extremely grateful, and excited for this year’s event!

Vision Statement

A world in which people with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure – A world Beyond Celiac.

Mission Statement

Beyond Celiac unites with patients and partners to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure.

Potential Impact for Autoimmune Diseases

Finding treatment options and ultimately curing celiac disease will advance research for other autoimmune diseases.1

The Future of Celiac Disease

  • Celiac disease is widely recognized as a serious, common, genetic autoimmune disease
  • People with celiac disease symptoms, and family members who are genetically at risk, are highly motivated to seek testing and diagnosis from medical professionals
  • Medical professionals readily identify symptoms and provide timely and comprehensive diagnosis so that people no longer have to suffer with known and unknown symptoms and hidden consequences of celiac disease
  • Medical care treatments are readily available that ensure there are no negative health or lifestyle consequences of being diagnosed with celiac disease
  • Insurers, including governments, recognize the benefit of medically treating and, eventually, curing celiac disease and provide coverage to make effective medical treatment affordable for everyone
  • Access to appropriate medical care and the standard of care that people diagnosed with celiac disease receive is consistent regardless of geography, social or economic boundaries
  • People with celiac disease are receptive to taking new treatments and living a “normal” life, free from the fear of food
  • Curing celiac disease provides a gateway to curing other autoimmune diseases
  • Beyond Celiac is the recognized conduit for education, exchange of information and partnerships between key stakeholders: patients, scientists and researchers, medical providers, pharmaceutical, diagnostic and biotech companies, and payers

1Fasano A & Shea-Donohue T. Mechanisms of Disease: the role of intestinal barrier function in the pathogenesis of gastrointestinal autoimmune diseases. Nature Reviews Gastroenterology and Hepatology 2, 416-422 (September 2005) | doi:10.1038/ncpgasthep0259

Beyond Celiac is now accepting applications for a Social Media Volunteer/Intern position for Step Beyond Celiac Dallas

The Dallas social media volunteer/intern will assist our Field Manager and other Dallas volunteers in the development of our 1st Step Beyond Celiac Dallas 5K event. Through social media, the intern will help to promote the event, meet sponsorship deliverables, and develop existing Step Beyond Celiac Dallas social pages. This is an excellent opportunity to help grow an event from the ground up and to work with a large, national nonprofit dedicated to finding a cure for celiac disease.

Reports to:

Field Manager, Fundraising

Responsibilities:

  • Work with our Field Manager and the Dallas Step Beyond Celiac Team to develop, create, and schedule on-target posts for Facebook, Instagram, Twitter.
  • Explore additional avenues of promotion of Step Beyond Celiac Dallas 5K event through social channels
  • With assistance, monitor and respond to comments, questions, and inquiries made on Step Beyond Celiac Dallas social media pages
  • Promote Step Beyond Celiac Dallas event and additional meetings, information, or other news related to the event.
  • Assist in meeting requisite social media deliverables from sponsors of the event
  • Grow the following and outreach of Step Beyond Celiac Dallas pages

Requirements:

  • Familiarity with Dallas and its community
  • An existing, demonstrable knowledge of social media platforms including Facebook, Instagram, and Twitter.
  • A connection to, or interest in, celiac disease
  • The ability to write clearly, concisely, and with enthusiasm for Step Beyond Celiac Dallas
  • Organizational and time-management skills in addition to the ability to work as a part of a team or on your own

Experience:

  • Working knowledge/ familiarity with social media platforms and page management
  • Familiarity with best practices in community engagement through social media

Applicants should send an email including a resume, your interest in the position, and (if applicable) any social media posts that you find relevant to JHunt@Beyondceliac.org.

This position will run until October 12th, 2019, or a few days after.

If you’re interested in volunteering or heading up a new location of Step Beyond Celiac, please contact Jilian Hunt at jhunt@beyondceliac.org or Nancy Ginter at nginter@beyondceliac.org.

Don’t want to attend a Step Beyond Celiac walk/run but still want to help advance celiac disease research? You can donate to Beyond Celiac directly!

DONATE NOW

To learn more about Step Beyond Celiac sponsorship opportunities, please contact the following individuals:

Kansas City/Dallas

Jilian Hunt
jhunt@beyondceliac.org

Philadelphia/Virtual/ National Sponsorship

Katie Jensen
KJensen@BeyondCeliac.org
267-419-2110

Learn more about Sponsorship Opportunities here.

"Sometimes you have to accept battles to get where you're going in life. I'm not exactly sure where that is, but if these past years are any guide, then I welcome another year! My [struggle with celiac disease] brought me to help create the nation's first Step Beyond Celiac 5K to benefit research towards a cure for celiac disease. This is about friends--new and old--giving back to community, participating in something bigger than yourself and winning....winning in life through a cure. Thanks to all who are making this happen."
Chad Shaffer
Beyond Celiac Board Member &
Co-Chair of Step Beyond Celiac Kansas City

CONTACT US

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